DO ONE DIABETES GUESTLIST: The Moment My Kid was Diagnosed with Diabetes…

DO ONE DIABETES GUESTLIST: The Moment My Kid was Diagnosed with Diabetes…

By Sophie McGregor

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What a Bobby-dazzler
I met Sophie aged  12, when we both started Aylesbury High School . We weren’t in touch for years after we left in 2000 but thanks to social media and parenthood we have have reconnected (horrid word for a such a nice thing).

My heart sank when I saw picture pop up on Soph’s feed saying that she and her family had had a week from hell after they discovered her youngest  Bobby , aged 5, had been diagnosed with Type 1 Diabetes. It something I know nothing about, but the concept of your child having a life changing condition is mind-boggling stressful.

Soph has started writing a blog Do One Diabetes documenting her experience and am honoured that she let me share this post written just 14 days after Bobby’s diagnosis.

Here’s her list: ‘What it feels like when your child is diagnosed with diabetes…’


 

  • Like we’ve been hit by a brick wall. I feel like the floor has been swiped from underneath me.

  • A step backwards. The freedom and independence that we had gained back from moving out of “baby stage” with both children has been immediately removed and I feel once again housebound and locked in.  

  • Exhausting. Having been a chilled out Mum, giving my babies freedom to run and explore life, this week I am obsessive, neurotic and paranoid, it’s exhausting.

  • Unsettling. Will I ever sleep a whole night again? Better still in the same bed as my husband? I’m not even asking for any extras (chance would be a fine thing), just a whole night of kip, in our bed.

  • Exhausting (again!) Am I now expected to be making wholesome, sugar free meals entirely from scratch every day? At the moment I can hardly find the energy to open a tin of beans. FML.

  • Unfair. I still feel so bloody cheated by the whole thing, I know I need to get over it but for now I think I want to wallow in a bit of self-pity for a little bit longer, sorry.

  • Humbling. Take lessons from your children, they are so honest and logical about EVERYTHING. The practicality of this diabetes thing is quite simple for Bobby at the moment, I must learn from that.

  • Remember to breathe Soph, it’s only been 12 days.

  • Overwhelming. Despite validation from the Consultants that we are managing things perfectly and they are over the moon with Bobby’s progress this week, I still feel I should be doing more.

  • Its changing me. I need to make myself look in the mirror before I go out the door, I’ve reverted to what I was like when they were new babies, hair up, sweats on, revolting, but thank god for botox at least . I’m resentful that Mr McGregor seems to still appear to be keeping fit, looking handsome and keeping up appearances, I however, am not.

  • I must have at least one conversation per day that is not about diabetes. Promise.

  • Overwhelming (again!) Insulin pumps, patches, meters and technology, which one? All? None? I’m overwhelmed with all of the options out there to manage Bob’s diabetes, it’s a minefield of information and I am OBSESSED with researching it all.

  • Ridiculous. I know this sounds ridiculous but I’m already worrying about him going out and getting drunk when he’s older (he’s currently 5). Will he be able to? Will I follow him everywhere? Whilst this is not important in the grand scheme of things, with us as his parents, its got to be a consideration.

  • Overwhelming (third and final time). So many wonderful people around us are offering help, I should learn to be grateful, take them up on it and not need to own and control every step of this journey. I know I’m a control freak, I’m working through it.

  • Confusing. Everyone seems to know best?! Perhaps not. We know Bobby best, we should have confidence in our decisions and not be brainwashed, especially by the mighty Google.

  • Challenging. I will NOT let this run our lives, it might do in the short term but long term, WE are going to boss this. 100%. We WILL take control back.

  • Frustrating. I hope Mr McGregor and I might one day view each other as ourselves again, as opposed to people that lose our shit at each other, count carbohydrates and argue over who is responsible for each insulin dose. We do love each other, honestly.

  • Do one Diabetes.

 

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3 thoughts on “DO ONE DIABETES GUESTLIST: The Moment My Kid was Diagnosed with Diabetes…

  1. Oh Sophie I feel for you I really do. It must be such a hard time for you. My husband is diabetic and has been for the last 20 years. His diagnosis was very difficult for him and his family. You are not alone. Once you get used to the new regime it will become second nature so this frantic period will settle. The worry will never go away. I worry when my husband goes out drinking without me because I am not there to look after him! But try to take it one step at a time. 20 years on my husband is a fun loving, fit and well person who happens to ave diabetes. He manages it well and has yet to develop any associated complications. He is married with 2 sons and is the headteacher. It hasn’t held him back. With your wonderful support your son will to grow up healthy and happy. In the meantime go easy on yourself xxx

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  2. I’ve been there clemmie. 5 years on, and we’re OK. It’s now part of life and very hard sometimes, but it gets easier, I promise. If she wants to talk to another mum facing the same problems, pass on my details xxx

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